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congenital heart disease

Cardiology

The Impact of Nurse-Led QI Projects

Jamin Sinclair-Lee, RN, (right) leads a rounds discussion outside of a patient room in the Children’s of Alabama Heart Center.

By Conan Gasque

In mid-2024, the Children’s of Alabama cardiovascular services team implemented a shift in the way they handled daily rounds. Instead of having attending doctors, fellows, or residents lead them, they decided to put nurses in charge. It was a quality improvement (QI) project that represented more than a process change; it handed the leadership role to the people closest to the patient. And its impact has been significant.

“It makes the most sense,” said Ashley Moellinger, MSN, CPNP-AC, MSHQS, the team’s lead pediatric nurse practitioner, “because [the nurse] knows the patient best, has been with the patient all along.”

Santiago Borasino, M.D., a cardiac intensivist at Children’s, agrees, saying it not only gives the nurse a greater voice, but puts the entire team in a better place. “It actually pushes the team to become a little bit more interdisciplinary where we all have something to say—we all have something to add to the to the plan.”

That’s crucial for the nurse and, by extension, the patient. For young nurses in particular, Borasino pointed out, it’s not always easy to speak up about the patient’s needs when a physician is leading rounds—even though the nurse may understand the needs better.

Moellinger
Borasino

“Having them present allows them to have the microphone and to be able to say what they want to say,” Borasino said. “They can choose what they say instead of having to interrupt us or correct us or bring up what they think needs to be done when we didn’t say it.”

More than two years after Children’s started the project, which was led by Caitlin Arney, RN, it’s now a core philosophy in the Children’s of Alabama Pediatric and Congenital Heart Center. “It used to be that if the nurse wasn’t at the bedside for whatever reason, we would start without the nurse,” Borasino said. “Now we don’t. The nurse is always there because they’re integral to this concept.”

The nurse’s presence helps standardize the process. “They use a script and a piece of paper, and it’s the same thing every time, whereas when someone else presents, it’s kind of what they think should be shared,” explained Moellinger, who serves as co-director of quality improvement in the Heart Center.

This standardization is one reason the QI project has made a significant impact on the effectiveness of rounds within the Heart Center. According to data gathered by the interdisciplinary nurse-led rounds task force that spearheaded the project, nurse-led rounds have sparked a statistically significant change in discussion of the patient’s history, titration goals for vasopressors, fluid balance goals, respiratory support weaning goals, withdrawal assessment tool scores, state behavioral scale scores, vital sign goals, and rescue medication plan. The group’s report also highlights improved communication among the interdisciplinary rounding team and a boost in confidence among the nurses, some of who were initially skeptical of the new strategy.

“They went from being really sort of anti and not really wanting it to now they love it,” Borasino said.

Moellinger and Borasino have twice presented data on nurse-led rounds at the annual Pediatric Cardiac Intensive Care Society (PCICS) conference. They believe other units within the hospital can use the same strategy to help improve communication and comprehensive discussion of each patient’s condition.

The Impact of Nursing in the Heart Center

Nurse-led rounds is just one of many nurse-led QI projects the Children’s cardiovascular services team has implemented over the last few years. Below are some of most recent ones. While they’re too new to have any significant data yet, they do provide hope for the possibility of improved processes and outcomes, especially in light of the success of past projects. “I would say nothing changes without the investment of those frontline people,” Moellinger said. “You have to have buy-in.”

The projects underscore the pivotal role that nurses play on the Heart Center team. “Nursing is extremely important for our center,” Borasino said. “And the relationships we have with our nurses are an extremely important part of the outcomes that we have and the work and joy that we all have.”

CURRENT NURSE-LED QI PROJECTS

Vital Signs and Parameters

Each patient has their own set of goals, limits, and parameters for their vital signs. In an ideal situation, the care team is discussing these numbers and entering them into the monitors at the patient’s bedside. The process ensures that the patient is staying within the proper range, and it can—through the use of alarms—help the team identify when the patient might be at risk for an adverse event, which would trigger the need for provider intervention. But if the correct numbers are not entered, the alarm may not go off when needed, or it may go off too frequently—creating a white-noise situation where a nurse might develop the habit of reflexively silencing the alarm every time.

To correct this issue, the team originally implemented a QI project in 2019, when alarms were sounding hundreds of times per bed each day, according to Borasino. That project helped to dramatically reduce that number. Now, in a second iteration of the project—led by RNs Abi Capouya, Emily Beach, and McKenna Leahy—the team is taking more steps to ensure that the alarms go off at the right time. Moellinger says the project focuses on ramping up daily discussions about each patient’s vital signs, while also auditing and adjusting processes to ensure that providers are being notified when limits are surpassed. With this latest version of the project, which stared in mid-2026, the team hopes to reduce cardiac arrest rates and identify patient deterioration sooner.

Dual Sign-off Process for Medications

To decrease medication errors, the Heart Center team uses a process called independent double check, which simply means that when administering high-risk medications to a child, two people must independently check that the medication is being administered properly. With the recent installation of new smart pumps designed to help with double check, the process is changing. That’s why the team—led by RNs Haley Cobb, Samantha DeArman, and Yanci Horton—has implemented a QI project to ensure that each step of the new drug administration process, now called dual sign-off, is being taken. This can include following the medication bag to the pump, making sure it’s programmed correctly, checking that the medication is reaching the patient in the correct access port, along with other responsibilities. “We haven’t really had a good step-by-step process for what double check looks like, which has made the compliance low,” Moellinger explained. “And especially now that we have these new pumps, there’s going to be a different process because you electronically sign off or hand off the drug together with a signature in the [electronic medical record].”

“We’re really trying to focus on and hone in on that process itself to help with medication errors,” she added.

Emergency Simulation

When an emergency arises in the Heart Center, preparation is crucial. Everyone on the team needs to know how to respond. That’s why leaders recently implemented a QI project in collaboration with the Children’s Pediatric Simulation center for training. “We’ve really started pushing into a lot of different areas and using simulation to help everybody get more comfortable with those emergent situations,” Moellinger said.

Missy Britton, CRNP, and Matt Clark, M.D., have led the effort alongside Sara Ewert, a nurse educator in the Simulation Center. One recent training simulated an emergency involving a patient on a ventricular assist device in a CT scanner, requiring multiple disciplines to respond.

In the Cardiac Care Unit (CCU), the team has also worked on response time to emergencies and the various responsibilities that come along with those, such as getting defibrillator pads on a patient, drawing up emergency drugs, administering drugs, recognition of deterioration, and administering bedside epinephrine.

“They’ve been doing a lot of one-on-one education, which is not really with the sim lab, but they’re simulating events in short segments to really work on all those responses,” Moellinger said.

Goals and Other Projects

With each of these nurse-led QI projects, the primary goals are improvement and sustainability. Eventually, leaders want the new processes to assimilate into the culture of the unit. Many previous projects have achieved that level of success, giving Moellinger and Borasino the hope that the newer projects will also become accepted standards.

Cardiology

A bridge to better outcomes

The bridges that connect UAB and Children’s of Alabama play a key role in the Bridging the Fetus collaboration.

By Conan Gasque

Among the crucial features of Children’s of Alabama’s Benjamin Russell building, which was added to the hospital’s campus in 2012, is a set of bridges that connect Children’s to the University of Alabama at Birmingham (UAB) Hospital. The two institutions have worked in partnership for decades, and the building and adjoining bridges further enhanced the relationship. Specifically, they allowed for patients to be transported efficiently from one hospital to the other when necessary for care. A collaboration called Bridging the Fetus takes advantage of this arrangement to help patients with congenital heart disease. It’s helped save many lives, even in some of the most dire situations.

The collaboration involves the Children’s cardiovascular ICU team, cardiologists, cardiac surgeons, UAB’s Maternal-Fetal Medicine team, and neonatologists. And the bridge, of course, which is perhaps the program’s most unique feature.

“The setup we have with the bridge is a big deal for us because it allows us to best take care of moms but also best take care of babies by being so close,” said Laura Brasseale, MSN, CRNP, chair of the Children’s cardiac fetal team.

Laura Brasseale, CRNP

Proper care for both the mom and baby is vital in these cases because many of the congenital heart diseases the team handles are identified prior to birth. Thus, the team must have a detailed plan in place for delivering the baby at UAB, then getting it to Children’s for care while the mom remains at UAB. Thanks to the bridge that connects the UAB Women and Infants Center to the Children’s Heart Center, the transfer can happen in mere minutes. As a result, Children’s and UAB have taken referrals from other parts of the Southeast in these cases where, in another city, the delivering hospital might be 20 minutes or farther away from the Children’s hospital. “It is very unique to our situation that we have all these resources literally connected to each other,” Brasseale said. Few other hospitals in the Southeast offer this type of setup.

The collaborative effort of Bridging the Fetus begins as soon as a patient is diagnosed with a congenital heart disease. Brasseale follows each case and takes information from the mom’s clinic visits with obstetricians and cardiologists. She uses this info to compile a list with data to help the team plan for the delivery. Before the baby is born, the team provides advice and counseling for the parents. They also arrange logistical services, such as transportation assistance, long-term stay options and other resources. Lactation specialists meet with the mom to discuss feeding options and the importance of breast feeding. Palliative care assists with end-of-life decisions, if necessary.

From the time the diagnosis is made, members of the team meet regularly to discuss details of the case and form a plan of care for the child’s delivery. “It just makes us aware so that we save beds for these neonates,” Brasseale said. “We get them transferred over from [the UAB Regional Neonatal Intensive Care Unit] as soon as possible so that we can plan their next steps after birth.”

Typically, the next steps involve taking the child across the bridge to be seen immediately by the heart team and undergo and operation shortly thereafter. The mother, meanwhile, remains at UAB to be cared for at the Women’s and Infants Center.

Cases like these are highly complex, Brasseale said. And the biggest challenge is the simple fact that no one knows when the baby will arrive. But Bridging the Fetus streamlines that for everyone. “We plan according to your due date, according to whether mom has any pre-existing conditions, whether she’s had other children before, where they live. All of that plays a factor in terms of how we plan for delivery on these babies.”  

Because of the planning, the team will know if the baby needs immediate care or if they can stay in the NICU for a few hours until a bed opens up. “It’s definitely a good heads up and provides a multidisciplinary approach for the family,” Brasseale said, “because Maternal-Fetal Medicine can refer them to genetic counseling and the neonatologist so the family can meet a wide variety of people before having the baby. So it can kind of calm nerves as far as that goes.”

The team also prepares the family by giving them hospital tours beforehand so they’ll get “an up-close look of who is going to be taking care of their baby and what their baby’s future looks like,” Brasseale added.

The most notable success stories owed to Bridging the Fetus involve babies with hypoplastic left heart syndrome with intact atrial septum. Babies with this condition lack intracardiac shunting, so oxygenated blood can’t reach the body. Most require immediate extracorporeal membrane oxygenation (ECMO) cannulation after birth to increase the chance of survival to palliative surgery.

Children’s and UAB have seen four such cases since they started Bridging the Fetus in 2016. Three of the babies were cannulated onto ECMO within 15 minutes of birth. Two had successful heart transplants. The results far exceed those at other centers, Brasseale says, and it’s due to the team’s coordinating and multidisciplinary approach. Just getting everyone on the same page has a complexity of its own, with multiple service lines involved and each one featuring 10-20 people with rotating on-call schedules. “There are so many players. I think that’s the biggest part,” Brasseale said. “So it’s just nice for the information to all be in one place considering there’s so many different people who need to be involved.”

The team also is participating in research related to its work with Bridging the Fetus. One study is taking a look at how delayed cord clamping among neonates with congenital heart disease can effect neurodevelopmental outcomes. Another is a collaboration with the Pediatric Cardiac Critical Care Consortium (PC4) and aims to advance understanding of the maternal-fetal environment and its influence on postoperative outcomes in children with congenital heart disease. “The role of maternal characteristics in postnatal outcomes is a major knowledge gap in the treatment of congenital heart disease,” Brasseale said. “Identifying these prenatal risk factors is the first step toward developing therapeutics to modify them.”

The team hopes these studies will pave the way to a better understanding of these highly complex neonates, which can only help further streamline their care and produce more positive outcomes.

“It’s really cool to see the team come together to provide the best care for the patient, because it’s a lot of different people from a lot of different disciplines and even hospitals,” Brasseale said. “But it’s very exciting to see a baby thrive that was really not destined to have a good outcome. So it’s very exciting to be a part of such a big team.”

Gastroenterology

Helping heart patients with swallowing and feeding problems

At Children’s, a multidisciplinary team cares for heart patients with swallowing and feeding problems. (Stock photo)

Within days of being born with hypoplastic left heart syndrome, or HLHS, in early 2025, “James” underwent life-saving surgery to reconfigure blood flow so the right ventricle of his underdeveloped heart could pump blood to his little body. Unsurprisingly, the newborn had trouble swallowing and building the endurance needed to feed by mouth. In swooped skilled clinicians from the Dysphagia Clinic at Children’s of Alabama, who worked with James and his parents to determine the safest, most optimal feeding strategy for him after discharge.

The baby—now heading toward his first birthday and doing well—exemplifies the value of the Dysphagia Clinic’s multidisciplinary approach. The clinic previously existed in other capacities at Children’s but coalesced in January 2025 after the arrival of physician assistant Alex Clifton, PA-C, who runs the once-weekly, full-day clinic, seeing about 10 patients each week. Clifton works closely with speech language pathologist Kristen Kirkland, MCD, CCC-SLP, along with several other speech clinicians who rotate to cover the clinic.

Leaders with the Children’s of Alabama Aerodigestive Program created the Dysphagia Clinic to address the feeding and nutrition needs of babies with congenital heart disease as well as babies followed within the Aerodigestive Program who need close support from the gastroenterology, nutrition and speech therapy teams. In the clinic, patients receive medical and speech therapy perspectives, along with nutrition support. Kelly Trumbull, a registered dietitian with the Children’s Clinical Nutrition team, is embedded in the clinic.

The cardiac portion of the program was designed to address the previous gap of multidisciplinary, outpatient feeding care for babies with congenital heart disease. The team cares for these patients using the pediatric feeding disorder framework, addressing medical, nutritional, skill and psychosocial needs. Cardiologists, pulmonologists, otolaryngologists and pediatric surgeons collaborate with the clinic on this effort.

“We long wanted to fill a local void in this type of care for these heart patients,” said Rachel Kassel, M.D., Ph.D., a pediatric gastroenterologist with the Aerodigestive Program. “Buy-in from the University of Alabama at Birmingham (UAB) Department of Pediatrics, the Children’s Hearing and Speech team and the Children’s Nutrition team—paired with having a team of passionate individuals in the Dysphagia Clinic—has improved outpatient feeding and nutrition care for babies with complex congenital heart disease.”

Congenital heart disease encompasses a set of conditions that greatly predispose a baby to feeding and swallowing difficulties. These problems occur in pediatric heart patients in several ways: either by compressing the esophagus or vessels; through nerve damage; or from rapid breathing and fatigue in infants that can disrupt the coordination of sucking, swallowing and breathing. Their cases can also be complicated by vocal cord paralysis, ECMO treatment or the need for intubation.

Clifton and Kirkland estimate that perhaps 70% of pediatric cardiac surgery patients deal with some component of feeding difficulty or aspiration. “Many pediatric GI programs in outlying communities refer to us, so we’re often the last step in the region for these complex kids,” Clifton said.

Clifton also sees patients in the Children’s GI clinic, addressing challenges with formula tolerance, advancing diet, and any other feeding issues. Additionally, she refers patients to the aerodigestive team, which treats children with overlapping problems involving the airway, lungs and upper digestive tract. In the Dysphagia Clinic, Clifton and Kirkland are often joined by nutrition specialists and other speech clinicians, and they also consult with social work and lactation professionals as needed.

“It’s helpful to have multiple disciplines looking at a child with complex medical problems,” Clifton said. “Every kiddo is different.”

Kirkland works closely with patients’ parents and caregivers to help them look for feeding stress cues in infants as well as signs of aspiration. She helps align the child’s individual challenges—which can also include aversion to oral feeding—with the needs of the family, often employing feeding tubes to fill the gap in nourishment. Other interventions can involve thickening formula, adjusting feeding utensils or bottles, and prescribing medications to help with reflux, nausea or appetite.

“Some babies associate eating with negative past experiences such as frequent emesis or overall GI discomfort or intolerance,” Kirkland explained. “And malnutrition alone makes them less likely to eat, because they tend to fatigue earlier.”     

All of these issues can affect a patient’s ability to lead a normal life, even down the road. But Kirkland and Clifton are doing their best to smooth the path forward.

“Feeding is a very emotional experience for a lot of families. It’s also something that families just expect to occur—that everyone can eat and swallow and enjoy those experiences,” Kirkland said. “While they’re inpatient, we’re trying to get them home, and in clinic, we’re focused on the long-term goals of how this will shape their future.”

The Dysphagia Clinic strongly complements and reinforces the care these cardiac patients are getting at Children’s, Clifton said. “We’re looking at the big picture,” she said, “and making sure they get all the resources they need—the individual parts that might otherwise get forgotten or overlooked.”

Cardiology

Children’s of Alabama’s interstage home monitoring program growing

Brittany Abercrombie, NP, and Alan Brock, M.D., discuss the progress of a patient in the Hearts at Home program.

As the reputation of the Children’s of Alabama Pediatric and Congenital Heart Center of Alabama has grown, so has the success of its programs. Case in point—Hearts at Home, an interstage home monitoring program for any patient with single ventricle physiology who has undergone their first palliation procedure. In the last five years, the program has seen steady growth in the number of these patients, and leaders say the center’s reputation is among the reasons why.

“I think as a heart center in general, we’ve just had an influx of patients,” said Brittney Abercrombie, a nurse practitioner and the coordinator of Hearts at Home. “And so by default, that means that we are having more interstage patients.”

When Abercrombie moved into her role five years ago, Hearts at Home was caring for six to eight patients at a time. Now, she says they typically have about 13. Yearly, the program follows as many as 30, compared with 23-25 when she began. In the last couple of years, they’ve attracted more patients from outside Alabama, including children from Georgia, Tennessee and the Pensacola, Florida, area. Some of the program’s patients chose Children’s over other options in the region.

“I think they recognize that our outcomes here are some of the best in the Southeast,” said Alan Brock, M.D., the program’s medical coordinator. “And when they have the opportunity to look around and pick which program they want, I think patients are choosing us.”

As a result of the program’s success, hypoplastic left heart syndrome—a condition that brings many patients to the program—has become one of the most common forms of single ventricle congenital heart disease the hospital treats, Brock added. “I think it’s because we’re getting better at what we do and we’re saving a lot more lives now,” he said. “That is part of the reason that there are more patients coming into our program.”

What is Hearts at Home?

Through the Hearts at Home program, the families of patients with hypoplastic left heart syndrome and other forms of single ventricle congenital heart disease have access to education and technology that helps them to monitor and track their child’s heart health at home during the period between their first and second stages of palliation—procedures designed to repair their congenital heart defect. This time is tenuous for the child and often stressful for the parents, requiring a great deal of medical management, including monitoring, medications, adhering to strict feeding regimens, checking vital signs and having emergency access to equipment. “I think especially for these first-time parents, they don’t know what’s normal and what’s not,” Abercrombie said. “They’re not only learning to parent, but they’re learning how to parent a medically fragile child, so I think that’s a big challenge for them.”

There’s also the threat of morbidity, which is what led to the creation of interstage monitoring programs. The effort began in 2008 with the formation of the National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC). Since then, interstage monitoring programs across the country have succeeded tremendously, dropping the interstage mortality rate by more than 40%, Brock said.

The programs are effective because of their focus on education, data and communication. The work begins before a family even leaves the hospital. While there, they go through extensive training to help them understand their child’s condition, how to manage it and the warning signs that might arise. Once they’re home, they track all of their child’s vitals—specifically heart rate, oxygen and saturations—through an app called Locus Health. This data is accessible by the patient’s care team, giving them a look at the patient’s trends and helping them to quickly identify any problems. “It helps us see the whole picture while they’re at home,” Abercrombie said. If any issues do arise, the family can connect with the care team via messages through the app, and providers can even use the app for telehealth appointments, if necessary.

In one case at Children’s, monitoring may have saved a child’s life. Abercrombie says the team detected a change in heart rate and some feeding intolerance, which, combined with the patient’s trends, indicated they needed medical attention. The team called the mom, got the patient in for a visit and prevented a medication overdose. “If we didn’t have [the monitoring], there’s a good chance that could have ended up in a mortality,” Abercrombie said.

The team

The Hearts at Home team includes, in addition to Abercrombie and Brock, cardiologists who see most of the interstage patients, a nutritionist who specializes in cardiovascular disease, a social worker and speech therapists. Nurse practitioners or intensivists are available to answer parents’ questions 24 hours a day, which can be reassuring. “It is just a very small group of people that are caring for these patients day in and day out, along with the family,” Abercrombie said. “And so I think that they feel a lot of comfort and confidence in knowing that there’s someone there to talk with them and help them throughout the day.”

This frequent communication can lead to close relationships between the parents and the care team—so much that when the child eventually “graduates” from the program (after having their second palliation procedure) and no longer has the same level of access to the team, the achievement is often bittersweet.

“It’s a good thing,” Abercrombie explains to the parents. “It means your baby has a much more stable heart. You shouldn’t need us as much. They can do a lot more normal baby things.”

“But [the parents] do have a little bit of sadness about losing kind of that access,” she added.

When a new patient enters the program, the team contacts their pediatrician to share information about the patient’s condition and explain how the program works and what to expect. They also reach to local EMS in the patient’s community to inform them that a congenital heart disease patient lives nearby so they’ll be prepared in case there’s ever an emergency.

Going forward, the program may expand to older patients. Brock hopes to focus future efforts on neurodevelopmental outcomes and “how these kids develop throughout the course of their single ventricle life,” he said. Nationally, the NPC-QIC recently merged with the Fontan Outcomes Network to form Single Ventricle One (SV-ONE) in an effort to follow these patients beyond their palliation procedures into their teens and beyond.